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Important update re NHS data sharing

 

Your health records contain a type of data called Confidential Patient Information. (CPI)  This data can be used to help with research and planning. You can choose to stop your CPI being used for this. You can also make a choice for someone else like your children under the age of 13. There are strict rules about how NHS can use your data. It's only shared securely and safely. Shared data helps the NHS. It has been used to find treatment for coronavirus and for vaccine research.

If you're happy with your CPI being used for research and planning you do not need to do anything.

Type 1 opt-out: medical records held at your GP practice

If you do not want your CPI to be shared outside of your GP practice for purposes except for your own individual care, you can register an opt-out with your GP practice. This is known as a Type 1 Opt-out. You can find out more at Who we share patient data with.

You can register a Type 1 Opt-out at any time. You can also change your mind at any time and withdraw a Type 1 Opt-out.

Data sharing with NHS Digital will start on 1 September 2021. If you have already registered a Type 1 Opt-out with your GP practice your data will not be shared with NHS Digital.

If you wish to register a Type 1 Opt-out with your GP practice before data sharing starts with NHS Digital, this should be done by returning this form to your GP practice. You can also ask for a form from the Surgery.

If you register a Type 1 Opt-out after your patient data has already been shared with NHS Digital, no more of your data will be shared with NHS Digital. NHS Digital will however still hold the patient data which was shared with us before you registered the Type 1 Opt-out.

Type 2 opt-out: information held by NHS Digital

Previously you could tell your GP practice if you did not want NHS Digital, to share CPI that they collect from across the health and care service for purposes other than your individual care. This was called a type 2 opt-out.

The type 2 opt-out was replaced by the national data opt-out. Type 2 opt-outs recorded on or before 11 October 2018 have been automatically converted to National Data Opt-outs.

National Data Opt-out

If you do not want NHS Digital to share your CPI with anyone else for purposes beyond your own care, then you can also register a National Data Opt-out.

To find out more about National Data Opt-outs and when they apply please go to the National Data Opt-out section

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